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What Is Coffin Siris? [Solved]
Coffin-Siris syndrome (CSS) is a rare genetic disorder that may be evident at birth (congenital). The disorder may be characterized by abnormalities of the head and facial (craniofacial) area, resulting in a coarse facial appearance.
There was no treatment for their child’s rare condition. Now they’re trying to create one.
Nina and Simon Frost have invested $150000 of their own money to research a cure for their daughter’s ultrarare genetic disorder.
Living with Coffin-Siris Syndrome
Graham Baxter and Geneviève Turcotte in Montreal, Friday, January 2, 2015. speak about living with with 3 year-old Éloïse who …
Local woman shares story of living with Coffin Siris Syndrome
KING 5’s Jenna Hanchard reports.
